My Journey with Graves’ and Hashimoto’s Disease

In 2015, four months after my son was born, I was diagnosed with Graves’ Disease. Graves’ is the most common disease related to hyperthyroidism.

Me, unaware my body was attacking my thyroid-also not pictured, the constant body aches and hunger

For about two months prior, I had noticed an increase in anxiety, irritability, frequent nausea which culminated in rapid weight loss, night sweats, and insomnia. While I didn’t mind the weight loss, I knew I couldn’t spend my entire motherhood an anxious, sweaty mess.

Thankfully, I was diagnosed after my first visit with my General Practitioner. He noticed my thyroid was enlarged and ordered a myriad of tests, including a full thyroid panel. When I got my results, my thyroid numbers were literally off the charts. Anti-thyroid medication got my numbers down, and I was counseled to go easy on carbs to stave off potential weight gain.

However, I was not told that I also had antibodies for Hashimoto’s (a cause of hypothyroidism), and I definitely wasn’t advised to try natural remedies, like taking selenium or altering my diet.

Five months after my diagnosis, I was still on medication, but my labs were stable, and I got pregnant with my second baby boy on the first try. My pregnancy was easy and apart from having a repeat cesarean after planning to try for a VBAC (vaginal birth after cesarean), everything went well.

During my second pregnancy, I switched endocrinologists, and she told me I had both Hashimoto’s and Graves’. She was more concerned about me going hypothyroid after my pregnancy, so we monitored my thyroid levels regularly, and I would see her every three to six months (depending on my labs).

After two years of stable levels and no medication, my husband and I tried for our third baby, and again got pregnant on the first try!

So true! I am constantly “scanning my body” for symptoms, and trying to decide if I’m at the start of a flare up.

I thought my thyroid issues were behind me, and I was blissfully entering into what I hoped was my last pregnancy. We miscarried at six weeks, and my endocrinologist ordered another antibody test to see if maybe that was a hidden cause.

One year and two miscarriages later, we are pretty sure that my Hashimoto’s is causing secondary infertility. Even though my thyroid numbers are stable, my thyroid antibodies are in the 4000 range (the highest they have ever been).

So, I’ve started my journey to remission the holistic way.

I am not opposed to medication, and will continue seeing my MD, but I’m ready to take charge of my own health, to do research, and to try as many non-invasive, non-medicated ways to lower my antibodies.

The first thing that any autoimmune book will tell you is to heal your gut, which typically means a huge change in diet. I’ve been aware of my need to eliminate gluten for a while and I try to avoid excess dairy and sugar, so the hardest change for me is no caffeine and no nuts.

Right now, I am pursuing a diet between Whole30 and Auto Immune Protocol. I’ve eliminated caffeine, alcohol, dairy, gluten, sugar (mostly), soy, grains (mostly), and nuts. I am working toward not eating tortilla chips (they’re my fave!), and possibly no eggs. These dietary changes are simply to calm inflammation, heal my gut, and to determine what my body can handle. This is not a lifelong diet.

I’m convinced that my adult life is just drinking increasingly weirder things in the name of health … 

Try this Maca Latte recipe from 40Aprons!

Like maca lattes, bone broth, and apple cider vinegar. Right now, my favorite is sparkling coconut water! I have also tried to cut back on perfumes and other potential endocrine disrupting chemicals like fluoride. It may sound kooky to some, but buying fluoride free toothpaste and not eating cake for a while won’t hurt me long term, like this autoimmune disease can.  

My long term health is so important to me. I need to be around for my boys, and I need to keep up with them. I have these dreams of being their soccer coach, or boogie boarding at the beach with them, and they need a healthy mom with enough energy to do that.  

Do you, or a mom friend you know, have an autoimmune condition? What are ways that have helped them?

 

 

 

victorialero
Victoria grew up in a military family, and spent her last two years of high school in Fort Polk, LA. She promised to leave Louisiana as soon as she graduated, but after touring LSU she felt that Baton Rouge wasn’t too bad, and stayed! While attending LSU for her bachelor’s degree in English, she met her incredible husband, Jeff. Together they have two wonderful boys, James (3) and Asher (1). Now, she’s proud to call Baton Rouge home, and has experience connecting with other moms through the local ICAN (International Cesarean Awareness) and Mothers of Preschoolers groups. She’s convinced that some of the best people in the world live in Baton Rouge, and loves raising her boys here. She loves to bake, especially vegan and paleo recipes! She’s a Chick Fil-a addict, and a lover of books and gardens! Both of her boys are full of life! James is a social butterfly who loves to sing worship songs all day, every day! Asher is a cuddle bug with a heart of gold, who has to do everything James does! When Asher was only 1 day old he was diagnosed with craniosynostosis (a condition where the plates in his skull fused prematurely). He had major surgery to repair the fused sagittal suture at 3 months old. He had helmet therapy for 11 months, and was the cutest “helmet baby.” Now, 7 months later, he’s a totally normal, very active toddler.

1 COMMENT

  1. I went through a similar experience, Victoria. After being diagnosed with Hashimoto’s, I started an elimination diet (removing gluten, dairy, soy, processed foods, etc.) That alone helped me tremendously. Since then I’ve been able to re-introduce various foods as tolerated. I also had my genetic testing done which let me know I am at risk for problems with foods that contain high histamines and high oxylates. That was another learning lesson!!

    I’m wondering… are there any MDs that you would recommend who treat Hashimoto’s / Autoimmune in Baton Rouge?

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