{Epilepsy Awareness Month} Seizures, You SUCK!

I can remember the day my child had his first seizure like it was ten minutes ago.  It is a moment in time that is embedded in my head for eternity.  The sight of my child turning blue, his 6 month old body shaking uncontrollably, his sweet voice crying out in distress….my life was forever changed.

When Connor was diagnosed with the rare brain malformation Schizencephaly at 6 weeks old the neurologist informed us that he had a 90% chance of having seizures, or moments of abnormal electrical activity in his brain, because of the deep clefts in his brain.  Digesting that information was extremely hard for me.  I had known one person my entire life that had seizures, but had never actually seen her seize.  My only perception of seizures was what I had seen on television or movies.  You know where an actor falls out, vibrating on the floor, foam coming out of their mouth, their eyes rolling back in their head….  Yeah that is what I was picturing, and I was mortified as I nervously waited for the seizure bomb to drop.

Epilepsy Awareness Month-Seizures - You

Well, that neurologist was right.  Connor did indeed begin having seizures.  And lots of them.  His very first seizure was just like the ones on the movies.  There was absolutely no denying what was happening to my precious baby boy and I’m thankful for this because the “seizure monster” can disguise himself in various forms.  I had no clue how many types of seizures there were before my life was thrust into the world of epilepsy.  Seizures can be convulsing, stiffening, jerks, staring into space, laughing, crying, one sided tremors, etc.  Connor has introduced me to 6 different types of seizures in his almost 8 years of life and as he gets older the seizures increase in frequency and intensity.  They are always around and ready to ruin the day at any given moment.

I’ve never had a seizure, so I cannot say how it feels personally.  But I can tell you how it feels to watch a person, especially your child, have one.  It is excruciating, literally painful.  Time stands still (yet feels like forever) and everything around you fades away as you hone in on your child, watching as an electrical storm fires away in his precious brain.  You want to make it stop, make the seizure stop scaring him, hurting him, killing his brain.  But more often than not, you can’t.  Sometimes the seizure is only a few seconds, sometimes it is 10 minutes or even longer.  Sometimes the seizure makes him cry, and sometimes the seizure knocks him into a deep, induced sleep…for days.  Sometimes the seizure stops by itself, and sometimes you have to intervene with emergency medication and pray that it works.  Seizures have a mind of their own and treat a brain like a playground, swinging from neuron to neuron.  You become a seizure expert in this line of parenting.  You quickly learn how to distinguish what is a bad seizure and what is a BAD seizure, who can babysit your child and who can’t, what medications work and which ones are awful, and sadly you learn when the ambulance needs to be called….after all you understand the reality of a seizure taking your child’s life. Can I just say, SEIZURES, YOU SUCK!

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You might wonder why I am wanting you to know about Epilepsy Awareness when your child doesn’t have epilepsy.  Well, at one point my child didn’t either.  That all changed in one instant, and our lives were tossed into a whirlpool of anti seizure meds, neurology appointments, seizure helmets, EEG’s, and living in fear of the next seizure.  Being the caregiver for a child/loved one with epilepsy changes you.  It changes how you think about everyday things like eating, drinking, walking, bathing…  It changes your relationships with others.  It changes how you worry about your child.  It changes how you sleep at night.  It changes everything.  The love you once had for this child with epilepsy is now gone, and in its place is this fierce love that comes with hawk eyes, grizzly bear strength, and an animal-like sense for things about your child you had no clue was humanly possible.

So if you are reading this and know someone affected by the seizure monster, send them a quick note to let them know you care.  You care about their situation and you care about their child’s well being.  You may not understand the death grip hold that epilepsy has on a person, but you understand that they need your support and encouragement.  It’s a lonely world to live in when no one “get’s it” and blows your child’s seizures off like you are a hypochondriac.  Having a friend that reaches out to offer hope, support, and love in this journey full of seizures can mean absolutely everything and renew our strength to keep fighting that seizure monster for our beautiful child with epilepsy.


Epilepsy is the 4th most common neurological disorder in the USA, yet public and private funding for epilepsy research lags far behind other afflictions.  Up to 50,000 Americans die each year from seizures and related causes, 1 in 10 people will suffer from a seizure in their lifetime, and there are 200,000 new cases of epilepsy each year.  An overall awareness of epilepsy is so greatly needed for reliable resources, services for those affected by it, and most importantly understanding and acceptance.

To learn more about epilepsy or to make a donation, please go to www.epilepsy.org.

If you are a fellow Louisianan you can learn more at  www.epilepsylouisiana.org.



Katie, a self proclaimed "momma bear", enjoys living her busy, country life with her husband of 10 years and 3 sons just outside of Baton Rouge in Tangipahoa Parish. Katie attended Southeastern Louisiana University where she obtained a degree in Elementary and Special Education. Little did she know how her love of children with special needs would grow shortly after she graduated college. Her middle son, Connor, was born with a rare brain disorder called Schizencephaly-he is wheelchair bound, nonverbal, blind, battles retractable epilepsy, and is fed through a feeding tube. Katie and Connor endure the many trials they are put through with a smile and joy in their heart. Along with being an active member in her church and working for an online public school, Katie regularly advocates for those who experience developmental disabilities at the Louisiana State Capitol. She is the Region 9 leader for Louisiana Citizens for Action Now (LaCAN) and is a member at large for the Governor’s Advisory Council on Disability Affairs. When life's challenges seems too much to bear, Katie remembers this quote to keep forging ahead and being the voice for those who have none, “God often uses our deepest pain as the launching pad of our greatest calling.” -unknown


  1. My son started having seizures he had his first seizure at 6 year within 12 hours We spent 6 days in the hospital where different doctors looking at different things couldn’t agree on why he suffered a seizure… He has had genetic tests including a muscle biopsy. I used to wonder why my son were getting so many vaccinations shots at such a young age, Still the doctors wouldn’t admit it was the vaccination shots. After his 2nd seizure I wouldn’t allow my son to be vaccinated anymore but I believe the damage is done. It was during a casual conversation with a friend that I learned about Doctor Lawson Bryan i was so glad to know him on how his herbal product work, I contacted Lawson and explain everything to him and make purchase of his product. few days later i received the herbal medicine my son used it for 3 mouths i notice improvement in less than a month my son was totally cured of seizure now he have not experience any sign of seizure. Contact doctor Lawson Bryan on this + 1 (979) 475-5130

    • I am interested in the treatment for epilepsy. Could you tell me a little about the treatment and how it works. I do not want to spend hard earned money and find out that I am being scammed by somebody pretending to be him. [email protected]


    Hi everyone, my name is Leen. I once shared a testimony of my cure from epilepsy. I actually had a lot of people who wrote and asked if it was true. Yes it is! I would not waste my precious time to come on the internet just to say what wasn’t true. I understand most of you have doubts; I once had it too, in fact I was so afraid, to get HILTON, because I felt it won’t probably work having taken all “researched” Conventional medicines for years. Doctor Mohan herbal medicine proved my doubts WRONG.

    Overtime, I have come to realize that seizure is not actually the big problem, the fear of finding alternative cure is. We are afraid of what the Doctor told us, “NEVER TO MISS A DOSE”, never to go out and find a cure, we should live a pity party life, always watch time so we can stick to our drugs, they can’t do anything to cure us, but we have to keep suppressing it with medications whose side effects are worse than their solutions. I believe freedom comes the day we begin to realize that we have been in the chains of fear, in chains of Doctors expert opinion, while we suffer shame, criticism, segregation and discriminations from those who do not know what it feels like to deal with seizure. Here I am today, being thankful that I broke all rules of fears, went overboard and finally got my desired cure. For 3 years now, I can sit and smile and say I overcame seizure! I won the war and battle my tonic-clonic had totally become a past.

    I am sharing this testimony again because I want others to find help just like I did. I knew what it was like, after spending money getting medications, and dealing with keppra and Lamictal side effects. To those who wrote that they contacted Doctor Mohan, and their seizure ceased totally after using HILTON, I will congratulate you all for having the courage to try. If you are still in doubt, I will advice you take a step and help yourself, help your child, or your spouse do not let their dreams die when HILTON herbal medicines can do wonder for them. To know more about HILTON which I used and got a permanent cure, visit Dr. Mohan blog via http://www.seizurecure.blogspot.com

    • I am interested in the treatment for epilepsy. Could you tell me a little about the treatment and how it works. I do not want to spend hard earned money and find out that I am being scammed by somebody pretending to be him. [email protected]

      Thank you.

  3. Is there anyway of getting in touch with this mum… someone has stolen an image of her son and is sharing it on his facebook and changed this little boys name 🙁 Please can someone let me know I want to make sure this mum is aware


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